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Privacy Policy

This Privacy Policy (the “Policy”) applies to access and use of Haven Website (the “Website”). This Policy describes what Haven does with the personal information collected on this Website, and may be changed without prior notice. If you do not agree with anything in this Policy, do not use this Website.

Privacy and Security:
Haven is committed to protecting, safeguarding and respecting the privacy of your personal information.  Unfortunately, the Internet is never 100% secure or private, so always be careful about the information you choose to transmit or post on the Website, and remember that no data transmission or data storage system can be guaranteed to be 100% secure. You acknowledge and agree that any time you transmit information to the Website, or upload information for storage in connection with the Website, you do so at your own risk. If at any time you feel your interaction with this Website is no longer secure, please notify us immediately (contact information below). 

Users should know when they voluntarily disclose personal information to other users of the Website (e.g., user name, e-mail address, birth date, health information, etc.) via message boards, chat forums, or otherwise, they can have no expectation of privacy with respect to this information, and it may be collected and used by others. Unless specifically asked by Haven, you should avoid disclosing personal information about yourself and others while using this Website.

What kind of personal information does Haven collect?
Haven may collect certain identifying personal information and non-identifying personal information from users. When users register to use this Website, they (or in some cases, their parents or guardians) are required to complete an online application providing the following identifying personal information:

email address

Haven collects this information and enters it into the Haven database, which is stored on the Haven server. Consent for use of this personal information is obtained from the user (or parent or guardian) at the time of registration.  

Certain non-identifying personal information may be collected by Haven from individual users when they use this Website, including user references, timestamps, IP addresses, etc., as well as information collected through cookies, pixel tags, web beacons, and other similar technologies, to better serve users with more tailored information and improve the functionality of this Website. 

Other than as described above, Haven does not collect any other personal information from users of this Website, except where such information has been specifically and knowingly provided by the user to Haven. Personal information users provide to Haven will be used only in connection with Haven study, or for such other purposes as are described at the point of collection.

How do we use the identifying personal information collected?
Haven uses your identifying personal information in order to personalize and tailor your experience within the website. While the standard mode of contact will be through the website, if necessary, your personal information will be used to contact you by phone or mail.

When is your personal information disclosed to third parties?
Haven will not disclose a user’s identifying personal information to third parties without the user’s consent unless required by law.

Other researchers in Canada and the USA will be able to access certain non-identifying personal information about users, such as age (by years, not birth date), gender, diagnosis, etc.

How do we maintain the security of your identifying personal information?
The personal information is kept in an encrypted, password-protected computer file, and confidentiality is maintained. All information transmitted between a user and the Haven website is encrypted to insure its security.

How long do we keep your identifying personal information?
Your identifying personal information will be retained for ten (10) years past your last logon to the Haven website.

Are you able to access your own identifying personal information?
Yes, you are able to access your own identifying personal information through the Website, and may edit such information through "My Account" at any time.

Third party links
The Website may contain links to third party websites. These linked websites are independent from this Website, and have their own privacy statements or policies. Haven has no control over these linked sites and is not responsible for the manner in which these linked sites collect or use your personal information.

Haven Social Network, 55 S Grand Ave., Pasadena, California, 91105